Guidelines

Long-term follow-up guidelines

Long-term follow-up care for childhood, adolescent, and young adult cancer survivors is important to facilitate early detection of health problems and timely initiation of interventions to preserve health. To ensure that childhood, adolescent, and young adult cancer survivors receive optimum healthcare, clinical practice guidelines for long-term follow-up care are essential.

Aims

The aims of the guideline are to:

• Promote healthy lifestyles
• Provide ongoing monitoring of health status
• Facilitate early detection of late effects
• Advise about timely intervention strategies to preserve health

The spectrum of health problems experienced by childhood, adolescent, and young adult cancer survivors. We provide recommendations regarding which patients need surveillance, what surveillance modalities should be used, at what frequency surveillance should be performed and what interventions are available if abnormalities are found.

Intended users

The guideline is aimed at clinicians who provide ongoing healthcare to survivors of childhood, adolescent, and young adult cancer. The recommendations are important for clinicians involved in the care of this population (e.g., physicians, nurse practitioners, physician assistants and nurses in the fields of pediatrics, oncology, internal medicine, family practice, and gynecology, as well as subspecialists in many other fields (e.g. endocrinology, cardiology, pulmonology).

Recommendations available to date

• Bone mineral density surveillance
• Breast cancer surveillance
• Cardiomyopathy surveillance
• Central nervous system neoplasm surveillance
• Coronary artery disease surveillance
• Dexrazoxane cardioprotection
• Fatigue surveillance
• Fertility preservation
• Hepatic toxicity surveillance
• Hypothalamic-pituitary dysfunction surveillance
• Male gonadotoxicity surveillance
• Mental health problems surveillance
• Obstetric care
• Ototoxicity surveillance
• Premature ovarian insufficiency surveillance, update in progress
• Psychosocial problems surveillance
• Thyroid cancer surveillance
• COVID-19 statement

Recommendations in progress

• Colorectal cancer surveillance
• Health promotion
• Growth hormone treatment
• Metabolic syndrome surveillance
• Nephrotoxicity surveillance
• Neurocognitive problems surveillance
• Pulmonary dysfunction surveillance
• Splenic dysfunction surveillance
• Anthracycline cardiotoxicity equivalence ratio